12 months ago I was in hopsital having surgery that turned out to be to remove the evilness from my small bowel. 12 months ago I was given a special pink gown to wear for the day as I was to spend my birthday in hospital. Rubbish.
Never again. This year I decided as I had the fortune (!) not to be hospitalised, and for my birthday to be over Easter, to enjoy a 4 day celebration! I am also in the position now that few will understand - that every birthday that I reach is a good thing - another milestone. If (when) I get there - my 40th is going to be bloody massive!
Started with an amazing day at The Making of Harry Potter at Warner Brother Studios, Leavesden. As a massive Harry Potter fan this was an awesome day - and actually rather emotional. I suspect due to HP being a part of my life for the last 10 years and there I was actually IN the Great Hall, and on Diagon Alley. Wow. I naturally had to purchase a few souvenirs including Snape's Wand (!!!) and Hermione's magic bag from the Deathly Hallows films - bit disappointed that I don't seem to be able to store a tent in there.
My actual birthday was spent visiting our new house in West Berks - so we could measure up and plan stuff. Hopefully we are moving at the end of this month. Very exciting but trying not to get too excited until we actually have the keys. Things in my life tend not to always go to plan - you may have noticed, so until it's all done and dusted then excitement must be kept under wraps!
Much excitement and merriment was had in the evening when celebrated my birthday with my soon to be neighbour! Lots of cocktails and giggles!
A bit of civilisation was had with a spot of Afternoon tea at Cliveden House on Easter Sunday. Yum. That is all.
And finally today - a wet and windy day in Brighton buying new shoes!
So all in all - a vast improvement compared to 2011 - but let's be frank, that's not hard! However I have spent it with some truly lovely people and felt very special. Life it going well at the moment. Had a slightly scary moment when was "summoned" to see Dr Evilness. Spent two days basically shitting ourselves and it transpired he just wanted to "catch up". Seriously. Don't scare the crap out of us for just a chat. I do think these people forget the power they have and how they can lift or crush you in one phone call. Anyway - my liver MRI was "all fine" but I still have to have the micro-bubble ultrasound with Dr Elusive. So I assume the whatever is in my liver is still there but no worse. And I get to have a full body CT scan in a couple of weeks. It's been a while since I had a good dose of x-rays. So the usual tests and waiting for results ensues. Again.
Anyway. So that's where we are. Ooh I am adopting 2 sock monkeys from the wonderful Monkey and Squidge. Now that I am excited about.
Cancer - a sense of humour is required. Especially bowel cancer - bums, bottoms etc. You have to laugh, otherwise you would cry - and there is plenty of time for that.
Monday, 9 April 2012
Monday, 5 March 2012
Weeeeeeeee, tubes and pricks
Apologies followers for my crapness - bad blogger I have been. I am currently writing this from the "comfort" of a hospital bed in Windsor. Now actually I shouldn't complain as 10 days ago I would have been writing from an even less comfortable hospital bed in Slough. They call it the private wing but it still had issues. My lovely little Windsor hospital is far nicer and I am sitting in my own room with Harry Potter and the Prisoner of Azkaben on in the background having just had my night time hot chocolate!
Why am I here may be the natural question that I perhaps ought to answer. For once in the last almost 3 years it isn't directly related to the evilness. I've been battling with some back pain recently which naturally I convinced myself was going to mean that the evilness had decided to munch at my bones. Anyway then I started to feel like utter shite with a cracking temperature. I was merrily in the process of trying to fry my brain - a past time that is not really recommended if you wish to maintain a teeny bit of intelligence and bodily function. So off to the GP I went. When will I learn that this is a foolish exercise? Had I chosen to forget that I was told for a year that I had gastroenteritis when in fact the evilness was invading my bowel? Seemingly so. Note to self - do not frequent the GP surgery, do not pass go, do not collect £200.
I digress. So she thought I had a kidney infection and put me on crappy trimethoprim - for those in the know ,rather old school. 48h later I didn't want to leave my bed, had become a prune and so it was time to see the real people - off to the evilness doctor I went and promptly had my pruney knuckles rapped for not coming in sooner and for having gone to the GP. OOPS!
Short version is I was admitted and onto iv fluids, given my dear friend iv cyclizine for the nausea - which my friends, I love as apart from stopping me feeling like hell, sends me totally off my face! I have been known in A&E to have slurred to Darrell after a hit, that I was "off my tits!" when not 10 minutes earlier was turning myself inside out into a delightful cardboard emesis basin. This time it was also blended rather warmly with a shot of pethidine. Bloody brilliant! I just lay there grinning like a loon. I am a big fan of the drugs!
24 hours later, an 11pm consult and ultrasound by my urologist (I like to collect consultants you see!) it was decided that my ureteral stent was blocked and I had pyelonephritis. I was then transferred from my lovely Windsor haven to scummy Slough so that my lovely radiologist could play around with more mind altering drugs and give me a nephrostomy ASAP. It seems that a few more hours delay could be critical. FUCK. I really was rather ill. There was scary talk of sepsis and horrid consequences which naturally I chose to stick my fingers in my ears and say lalalalala and ignore!
So there I was with a tube sticking out of my back draining some really rather grim stuff out of my right kidney. On seeing that it's hardly surprising I have felt like hell. I also added 3 different iv antibiotics to the mix and then just to tick another box, a blood transfusion. Two units of finest A+ gently meandered it's way into my veins. Weird thought that it's someone else's blood. Makes you think weird things. Will I be different after? Was it a man's blood? What if they can't spell or have crap grammar? Will my use of the apostrophe be wronged forever? Whatever the result thank you to the amazing person or people that took the time to donate. You rock.
Home I was sent with the tube in place and the indignity of carrying a bag of pee around with me for the next 7 days. Mind you it does create some fun each morning when I get to observe my day-glo, post-Berocca production mooching it's way down the tube, looking like I had some sort of renal nuclear reaction.
And so here I am today. The plan was to hopefully remove the stent and also the pee tube and bag combo. And once again stupid me forgets that things generally don't follow the aforementioned plan. So I woke from another drug induced fog - amusingly as observing the 3rd drug entering my vein whilst the anaesthetist was telling me some story about horses that I never got to the end of, I said Weeeeeeeeeeeeeeeeeeeeeeeee as I drifted away into my benzo-opioid-propofol induced snooze. Classy!
I woke up and the bloody pee tube is still there. Seems I still need a stent so my crusty blocked one was taken out and a fresh new one is now settling into to its home for the next 6 months. Arse. And so pee tube is there just in case stent doesn't behave. And instead of going home and snoozing happily in my own bed without having to turn over carefully for fear of pee tube exiting my back, I'm here in my sweaty hospital bed with pee tube staring back at me, having to pee in a dish so they can measure my "output". Dignity? Really? Paper pants sorted that out earlier today - especially when I woke up after the drug snooze with them cut open! Man I should have done a spot of lady garden tending in anticipation of flashing my bits to all and sundry.
Tomorrow will bring another visit to lovely radiologist for him to check stent has read the rule book and is doing what it says on the tin, and to blast me with more X-rays. Don't X-rays cause cancer? Mm bit late for that eh? No doubt lovely radiologist will ask me about his puppy's leg issues - he has the last 2 times I have seen him before altering my recollection of reality with more drugs! However alas tomorrow is a drug free exercise. Shame as I'm quite enjoying all the pickling of my brain and the warm and fuzzies that are a bonus with the poly-pharmacy. I feel like a bit of a junkie really! Silver lining and all that.
So that's me. A stenotic ureter and we don't know why. Found incidentally on an MRI, and was minding its own business until they spotted it. Now the treatment for it is causing me more issues than the original problem. Gotta laugh at the stupidity of it all really!
In other news, me and hubby have decided that sitting around and stagnating is not an option and put our house on the market. It is our first home together but to be honest we have not had the best of times since being there (one dead dog and 2 cancer diagnoses will do that for you) and it was never meant to be our forever home. So move on we shall. We had a buyer for it 10 days after it went on the market and today had an offer accepted on a place. Eek! Fingers crossed all moves smoothly and quickly. Time for a new start and a new beginning - 30 miles nearer to the pastie Mecca.
Talking of which whilst I was battling with kidney stupidness, my oldest bestest friend gave birth to her son, who after many days of deliberating shall be henceforth known as Hector (bloody brilliant name by the way). I am thrilled for her but the irony wasn't lost on me that I was there worrying that the evilness had come back and she was bringing a new life into the world. The one thing I wish for myself more than anything. Don't get me wrong, he is gorgeous and I am so happy that I get to be a fab auntie again. Funny how two people who met at their first Saturday jobs, 23 years ago, who both married 40-something year old divorcees, have now got lives going in very different directions. It goes without saying that my dear friend the green eyed monster has been voicing his opinions over the last few days. He is quite well behaved mostly and sits quietly in the corner but every so often he jumps into the middle of the room and ruins the party. I don't mind when he sits there dribbling quiety, but when he starts lighting his farts and shouting in my face, he is just damn annoying. However I can't really control his behaviour so I just have to try and ignore him as I suspect he isn't leaving the party anytime soon given the lack of contraception that my friends seem to be partaking in.
I guess I should go now as it won't be long before it is imperative that I am woken to check my "vitals" which will be normal as I was meant to be at home now. Deep breathe otherwise my BP will be up and then they will panic!
Why am I here may be the natural question that I perhaps ought to answer. For once in the last almost 3 years it isn't directly related to the evilness. I've been battling with some back pain recently which naturally I convinced myself was going to mean that the evilness had decided to munch at my bones. Anyway then I started to feel like utter shite with a cracking temperature. I was merrily in the process of trying to fry my brain - a past time that is not really recommended if you wish to maintain a teeny bit of intelligence and bodily function. So off to the GP I went. When will I learn that this is a foolish exercise? Had I chosen to forget that I was told for a year that I had gastroenteritis when in fact the evilness was invading my bowel? Seemingly so. Note to self - do not frequent the GP surgery, do not pass go, do not collect £200.
I digress. So she thought I had a kidney infection and put me on crappy trimethoprim - for those in the know ,rather old school. 48h later I didn't want to leave my bed, had become a prune and so it was time to see the real people - off to the evilness doctor I went and promptly had my pruney knuckles rapped for not coming in sooner and for having gone to the GP. OOPS!
Short version is I was admitted and onto iv fluids, given my dear friend iv cyclizine for the nausea - which my friends, I love as apart from stopping me feeling like hell, sends me totally off my face! I have been known in A&E to have slurred to Darrell after a hit, that I was "off my tits!" when not 10 minutes earlier was turning myself inside out into a delightful cardboard emesis basin. This time it was also blended rather warmly with a shot of pethidine. Bloody brilliant! I just lay there grinning like a loon. I am a big fan of the drugs!
24 hours later, an 11pm consult and ultrasound by my urologist (I like to collect consultants you see!) it was decided that my ureteral stent was blocked and I had pyelonephritis. I was then transferred from my lovely Windsor haven to scummy Slough so that my lovely radiologist could play around with more mind altering drugs and give me a nephrostomy ASAP. It seems that a few more hours delay could be critical. FUCK. I really was rather ill. There was scary talk of sepsis and horrid consequences which naturally I chose to stick my fingers in my ears and say lalalalala and ignore!
So there I was with a tube sticking out of my back draining some really rather grim stuff out of my right kidney. On seeing that it's hardly surprising I have felt like hell. I also added 3 different iv antibiotics to the mix and then just to tick another box, a blood transfusion. Two units of finest A+ gently meandered it's way into my veins. Weird thought that it's someone else's blood. Makes you think weird things. Will I be different after? Was it a man's blood? What if they can't spell or have crap grammar? Will my use of the apostrophe be wronged forever? Whatever the result thank you to the amazing person or people that took the time to donate. You rock.
Home I was sent with the tube in place and the indignity of carrying a bag of pee around with me for the next 7 days. Mind you it does create some fun each morning when I get to observe my day-glo, post-Berocca production mooching it's way down the tube, looking like I had some sort of renal nuclear reaction.
And so here I am today. The plan was to hopefully remove the stent and also the pee tube and bag combo. And once again stupid me forgets that things generally don't follow the aforementioned plan. So I woke from another drug induced fog - amusingly as observing the 3rd drug entering my vein whilst the anaesthetist was telling me some story about horses that I never got to the end of, I said Weeeeeeeeeeeeeeeeeeeeeeeee as I drifted away into my benzo-opioid-propofol induced snooze. Classy!
I woke up and the bloody pee tube is still there. Seems I still need a stent so my crusty blocked one was taken out and a fresh new one is now settling into to its home for the next 6 months. Arse. And so pee tube is there just in case stent doesn't behave. And instead of going home and snoozing happily in my own bed without having to turn over carefully for fear of pee tube exiting my back, I'm here in my sweaty hospital bed with pee tube staring back at me, having to pee in a dish so they can measure my "output". Dignity? Really? Paper pants sorted that out earlier today - especially when I woke up after the drug snooze with them cut open! Man I should have done a spot of lady garden tending in anticipation of flashing my bits to all and sundry.
Tomorrow will bring another visit to lovely radiologist for him to check stent has read the rule book and is doing what it says on the tin, and to blast me with more X-rays. Don't X-rays cause cancer? Mm bit late for that eh? No doubt lovely radiologist will ask me about his puppy's leg issues - he has the last 2 times I have seen him before altering my recollection of reality with more drugs! However alas tomorrow is a drug free exercise. Shame as I'm quite enjoying all the pickling of my brain and the warm and fuzzies that are a bonus with the poly-pharmacy. I feel like a bit of a junkie really! Silver lining and all that.
So that's me. A stenotic ureter and we don't know why. Found incidentally on an MRI, and was minding its own business until they spotted it. Now the treatment for it is causing me more issues than the original problem. Gotta laugh at the stupidity of it all really!
In other news, me and hubby have decided that sitting around and stagnating is not an option and put our house on the market. It is our first home together but to be honest we have not had the best of times since being there (one dead dog and 2 cancer diagnoses will do that for you) and it was never meant to be our forever home. So move on we shall. We had a buyer for it 10 days after it went on the market and today had an offer accepted on a place. Eek! Fingers crossed all moves smoothly and quickly. Time for a new start and a new beginning - 30 miles nearer to the pastie Mecca.
Talking of which whilst I was battling with kidney stupidness, my oldest bestest friend gave birth to her son, who after many days of deliberating shall be henceforth known as Hector (bloody brilliant name by the way). I am thrilled for her but the irony wasn't lost on me that I was there worrying that the evilness had come back and she was bringing a new life into the world. The one thing I wish for myself more than anything. Don't get me wrong, he is gorgeous and I am so happy that I get to be a fab auntie again. Funny how two people who met at their first Saturday jobs, 23 years ago, who both married 40-something year old divorcees, have now got lives going in very different directions. It goes without saying that my dear friend the green eyed monster has been voicing his opinions over the last few days. He is quite well behaved mostly and sits quietly in the corner but every so often he jumps into the middle of the room and ruins the party. I don't mind when he sits there dribbling quiety, but when he starts lighting his farts and shouting in my face, he is just damn annoying. However I can't really control his behaviour so I just have to try and ignore him as I suspect he isn't leaving the party anytime soon given the lack of contraception that my friends seem to be partaking in.
I guess I should go now as it won't be long before it is imperative that I am woken to check my "vitals" which will be normal as I was meant to be at home now. Deep breathe otherwise my BP will be up and then they will panic!
Thursday, 2 February 2012
Wakey wakey
We are feeling wonderfully relaxed after a fantastic long weekend down in our Mecca of Cornwall. It was Darrell's birthday on Friday so we booked a long weekend in a Landmark Trust property in a teeny hamlet called Coombe Valley - near Bude.
We have been there before and it is half a mile from the beach and there is no tv, no radio and no mobile signal! Bliss. Bye bye world for a few days. We had glorious weather on the saturday and I established that I am incredibly unfit on a walk along the coastal path. We walked back along this amazing beach.
Unfortunately on the way back whilst clambering over some rocks I slipped and landed on my lower back. Ouch - rather battered and bruised but was great to feel alive.
Sunday was rainy so had a brief walk and then chilled (read that as snoozed) in front of the open fire. Darrell got to be all manly and play with fires all weekend.
All in all it was wonderful.
One slight ironic thing is that (sorry to share too much) - my period that has been AWOL for the last 7 months due to the kick-ass drugs nuking my ovaries - decided to show up this weekend. Whoever thought I would be so pleased to see "the curse"!! Now this is potentially amazing news as there was the possibility that my ovaries would turn over, tuck themselves in and never wake up after the drugs. So the fact that they have decided that maybe their work isn't done is great. BUT - my body has obviously saved up all the pain etc from the 7 missing periods and condensed it into one. More ouchiness. Bastard female issues!
Now obviously there is the possibility that it really doesn't matter what my wee egg makers are up to if I can't beat the evilness. But hey - it's a start. At least there is perhaps an option. A glimmer of hope.
And hope can never be bad. Jeez - we have £6k's worth of hope shivering away at Hammersmith.
We like hope.......
We have been there before and it is half a mile from the beach and there is no tv, no radio and no mobile signal! Bliss. Bye bye world for a few days. We had glorious weather on the saturday and I established that I am incredibly unfit on a walk along the coastal path. We walked back along this amazing beach.
Unfortunately on the way back whilst clambering over some rocks I slipped and landed on my lower back. Ouch - rather battered and bruised but was great to feel alive.
Sunday was rainy so had a brief walk and then chilled (read that as snoozed) in front of the open fire. Darrell got to be all manly and play with fires all weekend.
All in all it was wonderful.
One slight ironic thing is that (sorry to share too much) - my period that has been AWOL for the last 7 months due to the kick-ass drugs nuking my ovaries - decided to show up this weekend. Whoever thought I would be so pleased to see "the curse"!! Now this is potentially amazing news as there was the possibility that my ovaries would turn over, tuck themselves in and never wake up after the drugs. So the fact that they have decided that maybe their work isn't done is great. BUT - my body has obviously saved up all the pain etc from the 7 missing periods and condensed it into one. More ouchiness. Bastard female issues!
Now obviously there is the possibility that it really doesn't matter what my wee egg makers are up to if I can't beat the evilness. But hey - it's a start. At least there is perhaps an option. A glimmer of hope.
And hope can never be bad. Jeez - we have £6k's worth of hope shivering away at Hammersmith.
We like hope.......
Tuesday, 17 January 2012
Rollercoaster
Just a quick appointment he said - just to make sure I am recovering well from the chemo. Just to have a chat about my routine bloods. So I wasn't fretting at all.
Mmm how silly of me.
If you remember I was given the all clear on December 7th so I have had a month of thinking I could start to make plans without the cloud of the evilness inside me. Hope is a valuable thing when you are fighting this war. Hope is also a very high place to fall from when the Drs decide to change their minds. Again. Hope is something I don't often have and so when I am given it I hang on to it with every ounce of my soul. So when they change their minds they take my hope away - and maybe just a little of my soul.
Anyway - they have decided that the fatty thing in my liver might not be. It could be a dead tumour. The bottom line is they actually don't know. Now don't get me wrong, I know that medicine is not an exact science and imaging only gives an indication of what something might be. But - and this is a bloody great but - if you don't know then say so - don't say it is all fine. This is my life you are messing with. My hope. My soul.
So I now have to have more tests - more scans to get a better idea of what is going on. There is a big difference between a fatty lump and a dead tumour. Now yes - good that if it is a tumour it is dead - but ultimately it still means that the evilness has got to my liver - and that is not good.
I am now back to trying to get on with my life and I will deal with the results in February when I get them. I can't worry now otherwise the evilness gets another month off of me. But it is hard. It has been a crap few days - another pregnant friend to deal with; Harry my one eared cat, has renal failure; and another friend has been diagnosed with this fucking disease. Luckily hers has all been removed surgically and she doesn't need any more treatment. How wrong is it that I am jealous of her? This damn disease is trying to turn me into a jealous, jaded, cynical person and I hate that. How mad is it to be envious of someone elses cancer? How warped is that? I hate that the happiest moment of a womans life is something that destroys me every time. Is it ever going to get easier to congratulate another pregnancy? Some friends are on their second now. Don't get me wrong - I am thrilled for them but each time it takes another bit of me; takes another bit of my heart.
Will I ever get my turn?
Mmm how silly of me.
If you remember I was given the all clear on December 7th so I have had a month of thinking I could start to make plans without the cloud of the evilness inside me. Hope is a valuable thing when you are fighting this war. Hope is also a very high place to fall from when the Drs decide to change their minds. Again. Hope is something I don't often have and so when I am given it I hang on to it with every ounce of my soul. So when they change their minds they take my hope away - and maybe just a little of my soul.
Anyway - they have decided that the fatty thing in my liver might not be. It could be a dead tumour. The bottom line is they actually don't know. Now don't get me wrong, I know that medicine is not an exact science and imaging only gives an indication of what something might be. But - and this is a bloody great but - if you don't know then say so - don't say it is all fine. This is my life you are messing with. My hope. My soul.
So I now have to have more tests - more scans to get a better idea of what is going on. There is a big difference between a fatty lump and a dead tumour. Now yes - good that if it is a tumour it is dead - but ultimately it still means that the evilness has got to my liver - and that is not good.
I am now back to trying to get on with my life and I will deal with the results in February when I get them. I can't worry now otherwise the evilness gets another month off of me. But it is hard. It has been a crap few days - another pregnant friend to deal with; Harry my one eared cat, has renal failure; and another friend has been diagnosed with this fucking disease. Luckily hers has all been removed surgically and she doesn't need any more treatment. How wrong is it that I am jealous of her? This damn disease is trying to turn me into a jealous, jaded, cynical person and I hate that. How mad is it to be envious of someone elses cancer? How warped is that? I hate that the happiest moment of a womans life is something that destroys me every time. Is it ever going to get easier to congratulate another pregnancy? Some friends are on their second now. Don't get me wrong - I am thrilled for them but each time it takes another bit of me; takes another bit of my heart.
Will I ever get my turn?
Monday, 2 January 2012
Photo-a-Day
The more observant amongst you may have noticed a few additions to my blog layout - or not!
I have added a link so you can (hopefully) be notified by email when I add a post.
Also for the 4th year I have embarked on my Photo-a-Day project. 2009 didn't go well. I completed it in 2010 but lost my way a bit in 2011. I use it as a bit of a photo diary of my year, but also to develop my photography skills. Also it is a great way for me to meet others with the same interest. I am hoping this will be a more positive year and so my photos will reflect that. I have added a link to my images on the blog too.
My brother has joined my geekdom and gotten the photography bug - so he is doing PAD too. I can't wait to watch his skills develop this year. Mind you his images will be amazing as he lives in Oz - sunshine always improves everything!
Enjoy!
I have added a link so you can (hopefully) be notified by email when I add a post.
Also for the 4th year I have embarked on my Photo-a-Day project. 2009 didn't go well. I completed it in 2010 but lost my way a bit in 2011. I use it as a bit of a photo diary of my year, but also to develop my photography skills. Also it is a great way for me to meet others with the same interest. I am hoping this will be a more positive year and so my photos will reflect that. I have added a link to my images on the blog too.
My brother has joined my geekdom and gotten the photography bug - so he is doing PAD too. I can't wait to watch his skills develop this year. Mind you his images will be amazing as he lives in Oz - sunshine always improves everything!
Enjoy!
A New Angel
Sadly there is another angel watching over us today. Kristian Anderson was 36 and lost his brave fight against bowel cancer at 8am on 2nd January 2012.
Kristian's blog has been truly inspirational.
http://howthelightgetsin.net/
He had a very strong faith and I admire him for this. I find it hard to have a belief in a higher being, especially during this fight. However Kristian's faith kept him strong. He leaves behind a wife and two young sons. Any death is a tragedy but even more so when two boys will now grow up without a father. So wrong and so unfair.
Kristian campaigned successfully for the availability of the drug Erbitux in his home of Australia. It is a new "biological" drug in the war - an antibody against cancer. It is a targeted treatment but as a result very expensive. Thanks to Kristian, Australians can now receive Erbitux.
Rest well Kristian. You are with your Father now.
Kristian's blog has been truly inspirational.
http://howthelightgetsin.net/
He had a very strong faith and I admire him for this. I find it hard to have a belief in a higher being, especially during this fight. However Kristian's faith kept him strong. He leaves behind a wife and two young sons. Any death is a tragedy but even more so when two boys will now grow up without a father. So wrong and so unfair.
Kristian campaigned successfully for the availability of the drug Erbitux in his home of Australia. It is a new "biological" drug in the war - an antibody against cancer. It is a targeted treatment but as a result very expensive. Thanks to Kristian, Australians can now receive Erbitux.
Rest well Kristian. You are with your Father now.
Sunday, 1 January 2012
Happy New Year
So a new year begins. Traditionally we all think about resolutions and what we hope to achieve over the next 12 months. We also reflect on the year gone by.
2011 - what a year. It started as a year that was filled with hope and positivity. Hell, we even dared to make more long term plans. We were going to start trying for a family in September - having been good and waited the 18 months since finishing chemo. Unfortunately the evilness decided to ruin another family member's party and my wonderful father-in-law got the dreaded diagnosis whilst I was in hospital in March. Before I had my results we decided that if they were "good" then sod waiting til September. However - the evilness had other ideas and I got the news I was most dreading - it was back. And this time the long term prognosis is crap. So the rest of the year was spent going to war once more. Once more trying to kick the evilness.
We had an amazing holiday half way through chemo which was just what our souls needed. Then came the news that my liver was now affected so chemo stopped. But then more tests suggest otherwise. It would appear at the moment I am in remission.
And that is how I start 2012. Remission. Not cured - I haven't beaten this disease. I think everyone thinks that I have and I sort of feel that I am letting them down as that isn't the case. There is a very high chance that the evilness is going to come back - it is really just a matter of when.
So what do I hope for in 2012? Not to lose weight, or give up some vice or other, or go the gym more. No, my hope for 2012 is to make it through the year - alive. To be able to welcome in 2013. I'm sure not something that most people are wishing for - they just take that for granted. Nothing in my life can be taken for granted anymore. I can't really make any plans as it seems that when I do they just get taken away from me. The only hope and dream I have now is to survive.
But what the evilness can't take away from me is the love and support of my family and friends. It is the strongest thing I have and for that I am truly thankful. Without them this year would have been so much more difficult. They give me a reason to go on with this fight. I hope to be able to spend more time with them this year.
2011 - what a year. It started as a year that was filled with hope and positivity. Hell, we even dared to make more long term plans. We were going to start trying for a family in September - having been good and waited the 18 months since finishing chemo. Unfortunately the evilness decided to ruin another family member's party and my wonderful father-in-law got the dreaded diagnosis whilst I was in hospital in March. Before I had my results we decided that if they were "good" then sod waiting til September. However - the evilness had other ideas and I got the news I was most dreading - it was back. And this time the long term prognosis is crap. So the rest of the year was spent going to war once more. Once more trying to kick the evilness.
We had an amazing holiday half way through chemo which was just what our souls needed. Then came the news that my liver was now affected so chemo stopped. But then more tests suggest otherwise. It would appear at the moment I am in remission.
And that is how I start 2012. Remission. Not cured - I haven't beaten this disease. I think everyone thinks that I have and I sort of feel that I am letting them down as that isn't the case. There is a very high chance that the evilness is going to come back - it is really just a matter of when.
So what do I hope for in 2012? Not to lose weight, or give up some vice or other, or go the gym more. No, my hope for 2012 is to make it through the year - alive. To be able to welcome in 2013. I'm sure not something that most people are wishing for - they just take that for granted. Nothing in my life can be taken for granted anymore. I can't really make any plans as it seems that when I do they just get taken away from me. The only hope and dream I have now is to survive.
But what the evilness can't take away from me is the love and support of my family and friends. It is the strongest thing I have and for that I am truly thankful. Without them this year would have been so much more difficult. They give me a reason to go on with this fight. I hope to be able to spend more time with them this year.
So to you all, I thank you. Please stay with me on this journey and please leave comments so I know that you are there! I wish you all a happy and healthy 2012.
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